Cystic-Fibrosis-Symptom.com was created in January 2004, to help people who live or know someone living with cystic
fibrosis find information, resources, news, treatments, and other aspects of this very complicated genetic disorder that affects many organs in the body.
My Story
My first introduction to cystic fibrosis, was when I was young and a friend at church had CF. I knew it was or could be fatal for the person living with this disease, but that was about it.
I remember being very sad knowing my friend might not live past 20 or 30. It might just have been the moment I realized that life doesn't just evolve around my world. Perhaps the moment when my life became a little more "less carefree" as a child and a awakening to adulthood that carried with it,...
"Life is bigger than
I realized and there are other worlds in this world, than my own."
Eventually, I moved away from where I was living where I had a friend with CF and really didn't think to much about CF after that. Little did I know, or realize at that moment in my life how much this disease my friend had would affect my life, as I began that journey from a child to adulthood.
In 1989, my wife and I had our our first child. She was a healthy beautiful girl.
My wife grew up working with little children at a daycare and babysitting. She and I had siblings, so naturally we both loved and wanted a second child. Almost two years to the date from our first child, our handsome son JD was born.
As our first, we thought our second would be as healthy and appeared to be healthy until he was about two months old. | At two months, JD began throwing up most of what we were trying to feed him.
Nothing seemed to stay down.
After a few days, we realized something wasn't right and took him to the hospital. After tests had been done, the results came back as CF.
Those words immediately rang a bell, but I did not realize, or remember this to be the disease my friend had when I was younger.
My wife and I were devastated as the doctors explained what was going on with our son.
I mean to be told your child has a fatal genetic disease with an average lifespan attached to it, is perhaps one of the worst diagnosis, parents of a new born can receive.
I didn't want to bury my own child one day I thought to myself.
Now, our son JD is 13 yrs old. Our two children, is what my wife and I cherish and love the most about our life. Justin is still handsome, and our daughter is still beautiful. However they are a lot bigger now.
I've learned much from starting this website as I've struggled over the years to accept my son's condition. However, I have not lost any hope in my son having a long healthy life. I hope in someway this site can help those living with CF.
D Newland
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