Back to Home Cystic Fibrosis Foundations and Resources American Lung Association® Cystic Fibrosis Fact Sheet: Boomer Esiason Foundation- Partnership of Leaders working towards a cure for Cystic fibrosis. BraveKids- Resources for children with chronic. life-threatening illnesses and disabilities. Breath4CF.org - Helping CF Athletes Breathing Room - The Art of Living with Cystic Fibrosis. Canadian Cystic Fibrosis Foundation- CF CARE CF Resource Centre (UK) - Useful source of information for people with cystic fibrosis, their families and other care givers. CF Pharmacy - Pharmacy for patients and families (across the United States) formed specifically to meet the needs of CF patients. CF Services Pharmacy - A subsidiary of the Cystic Fibrosis Foundation. Children's Organ Transplant Association (COTA) Cochrane Cystic Fibrosis & Genetic Disorders Group Cystic Fibrosis Australia - Cystic Fibrosis Foundation- A resource of information on Cystic Fibrosis. The Cystic Fibrosis Foundation 6931 Arlington Road, #200 Bethesda, MD 20814 Telephone: 301-951-4422 or 1-800-344-4823 Cystic Fibrosis Foundation Chapters and Care Centers- State by state resources Cystic Fibrosis Research Institute- Researching and funding Cystic Fibrosis. CFRI Bayside Business Plaza 2672 Bayshore Parkway Suite 520 Mountain View, CA 94043 Telephone: 650-404-9975 FAX: 650-404-9981 Cystic Fibrosis Mutation Database- Database devoted to the collection of mutations in the CFTR gene. Cystic Fibrosis Medicine - Cystic Fibrosis Victoria - resources and information for those living in Australia Cystic Fibrosis World Wide- works to promote access to appropriate care and education to those living with cystic fibrosis world wide. Cystic-L - Cystic Fibrosis Information and Support Email-based discussion group Doctor Directory.com - Database of 500,000 doctors in the United States. HealingWell.com - Cystic Fibrosis Resource Center - Community and information resource site to medical news, articles, video web casts, forums and chat, books, newsletters, and links to related resources. Hospital Directory.com - Database of 10,000 hospitals in the United States. International Association of Cystic Fibrosis Adults (IACFA)- Johns Hopkins Medicine - Cystic Fibrosis Research Development Center MD Junction - Find a doctor. Know your doctor. Medical Definitions.com - Medical Dictionary and Medical Pictures National Heart, Lung, and Blood Institute- National Heart, Lung, and Blood Institute (NHLBI) NHLBI Health Information Network P.O. Box 30105 Bethesda, MD 20824-0105 Telephone: 301-592-8573 Nemours Foundation- Cystic Fibrosis site for Teens. Nemours Foundation- Cystic Fibrosis site for Kids. REACHING OUT FOUNDATION - Enhancing the lives of patients with Cystic Fibrosis SOURCE CF - Serving people with CF (airway clearance products, antibiotics, inhalation products, vitamins, etc...) The Cystic Fibrosis Center at Stanford- A guide to living with CF TOBI Foundation-Cystic fibrosis patients in financial need. TOBI Foundation 250 Technology Park, Lake Mary, FL 32746 Toll Free:(877) TOBI 4 CF Fax: (866) 899-TOBI Transplant Square - Comprehensive Information on Transplantations. The Vest Airway Clearance System - Airway clearance products Your Genes Your Health- Very comprehensive site explaining Cystic Fibrosis. Public Assistance Programs Back to Home This web site is intended for your own informational purposes only. No person or entity associated with this web site purports to be engaging in the practice of medicine through these web pages. The information you obtain is not intended as a substitute for the advice of a physician or other health care professional. If you have an illness or medical problem, contact your health provider.