American Lung Association® Cystic Fibrosis Fact Sheet:

Boomer Esiason Foundation-
Partnership of Leaders working towards a cure for Cystic fibrosis.

BraveKids- Resources for children with chronic. life-threatening illnesses and disabilities.

Breath4CF.org - Helping CF Athletes

Breathing Room - The Art of Living with Cystic Fibrosis.

Canadian Cystic Fibrosis Foundation-

CF CARE

CF Resource Centre (UK) -
Useful source of information for people with cystic fibrosis, their families and other care givers.

CF Pharmacy - Pharmacy for patients and families (across the United States) formed specifically to meet the needs of CF patients.

CF Services Pharmacy - A subsidiary of the Cystic Fibrosis Foundation.

Children's Organ Transplant Association (COTA)

Cochrane Cystic Fibrosis & Genetic Disorders Group

Cystic Fibrosis Australia -

Cystic Fibrosis Foundation- A resource of information on Cystic Fibrosis.
The Cystic Fibrosis Foundation
6931 Arlington Road, #200
Bethesda, MD 20814
Telephone: 301-951-4422 or 1-800-344-4823

Cystic Fibrosis Foundation Chapters and Care Centers- State by state resources

Cystic Fibrosis Research Institute- Researching and funding Cystic Fibrosis.
CFRI
Bayside Business Plaza
2672 Bayshore Parkway Suite 520
Mountain View, CA 94043
Telephone: 650-404-9975
FAX: 650-404-9981

Cystic Fibrosis Mutation Database- Database devoted to the collection of mutations in the CFTR gene.

Cystic Fibrosis Medicine -

Cystic Fibrosis Victoria - resources and information for those living in Australia

Cystic Fibrosis World Wide- works to promote access to appropriate care and education to those living with cystic fibrosis world wide.

Cystic-L - Cystic Fibrosis Information and Support
Email-based discussion group

Doctor Directory.com - Database of 500,000 doctors in the United States.

HealingWell.com - Cystic Fibrosis Resource Center - Community and information resource site to medical news, articles, video web casts, forums and chat, books, newsletters, and links to related resources.

Hospital Directory.com - Database of 10,000 hospitals in the United States.

International Association of Cystic Fibrosis Adults (IACFA)-

Johns Hopkins Medicine - Cystic Fibrosis Research Development Center

MD Junction - Find a doctor. Know your doctor.

Medical Definitions.net - Medical Dictionary and Medical Pictures

National Heart, Lung, and Blood Institute-
National Heart, Lung, and Blood Institute (NHLBI)
NHLBI Health Information Network
P.O. Box 30105
Bethesda, MD 20824-0105
Telephone: 301-592-8573

Nemours Foundation-
Cystic Fibrosis site for Teens.

Nemours Foundation-
Cystic Fibrosis site for Kids.

REACHING OUT FOUNDATION - Enhancing the lives of patients with Cystic Fibrosis

SOURCE CF - Serving people with CF (airway clearance products, antibiotics, inhalation products, vitamins, etc...)

The Cystic Fibrosis Center at Stanford-
A guide to living with CF

TOBI Foundation-Cystic fibrosis patients in financial need.
TOBI Foundation
250 Technology Park,
Lake Mary, FL 32746
Toll Free:(877) TOBI 4 CF
Fax: (866) 899-TOBI

Transplant Square - Comprehensive Information on Transplantations.

The Vest Airway Clearance System - Airway clearance products

Your Genes Your Health-
Very comprehensive site explaining Cystic Fibrosis.

Public Assistance Programs

Other Cystic Fibrosis Resources

VIEW INTERACTIVE SLIDESHOW ON CYSTIC FIBROSIS

Great informative Books on Cystic Fibrosis

Join our Discussion Group on Cystic Fibrosis

Printable Brochures   

A manual for the CF patients and their families PDF format
Cystic Fibrosis Newly Diagnosed PDF format
Cystic Fibrosis - Teachers PDF format
Cystic Fibrosis - Questions & Answers PDF format